Our boy Dashiell is home safe from the hospital! It was a long road, including six days and nights in the ICU and another three days in the regular hospital, three separate medical procedures, and an unbearable amount of suffering, but the worst is over, and he’s on the mend…
There’s still more medical work in play. He came home with a PICC installed in his arm, which is sort of a mechanical shortcut between his arm and his Vena Cavae, through which his mother must pump him full of a number of drugs on a daily basis. He also still needs more blood tests, and may need to be treated for ongoing fevers for up to two months.
That said, let me tell you about my little boy. At the ripe old age of three, he nearly died of pneumonia. Attacked by four separate virulent microbes at the same time, his lung collapsed, and his chest filled with fluid. While this was going on, and adults scurried around him, he fought harder than I have ever seen anyone fight.
When things were at their worst, he was able to spend hours learning and using meditative breathing exercises to get extra air and deal with the excruciating pain he was in. While he was drugged and barely conscious, his little heart running at nearly 200 beats per minute for thirty hours, cycling every drop of blood in his body in around 90 seconds to scavenge every last bit of available oxygen, he regularly woke to tell his desperate father that he “felt a little bit better” and could he “please have some chocolate milk”.
His parents have never been so terrified, nor so proud, in their entire lives.
Dash is recovering well, but his body is still beaten and bruised, and it will be a few weeks before he has his usual energy back. He is still in pain, but regularly smiles and laughs, which we haven’t seen in weeks. His parents are also recovering well!
We cannot say enough in praise of the doctors and nurses in Albany Medical Center’s emergency room, pediatric intensive care unit, and infectious disease unit. They literally saved our son’s life, and were, to a man, caring, understanding, and professional throughout. We also want to thank the Ronald McDonald House organization and volunteers for providing a homey, comfortable space just feet away from our son’s room where terrified parents could find a few moments of normalcy and respite from the relentless torrent of stress and fear.
We were also truly moved by the massive support we received from family, friends and neighbors during this trial. There were moments when that support was the only thing that kept us all going and sane (and fed!).
The End (we hope…)